SDSS (Self-Directed Support Scotland) is a national membership organisation which actively promotes Independent Living for disabled people.
They are conducting a research project and would like you to share your stories in order to help create services that meet your needs.
What is the research study about?
The study is to look at the value of disabled people’s user-led organisations. A user-led organisation is one that is designed by and for disabled people. The organisation must provide information, advice, training and support from other disabled people.
Lothian Centre of Inclusive Living (LCiL) is run by and for disabled people. Because of this, we understand the barriers that disabled people face and have created a place where disabled people can come together and share their experiences so that others can learn.
If you are one of our service-users (belong to or a user-led organisation), then SDSS would like to hear from you.
How will it help disabled people?
The aim of this study is to look at how service users can learn from other disabled people’s lived experiences, to make informed choices to live more independent lives. As a part of a disabled persons organisation, through sharing your stories we can create services meet that your needs. Then your organisation can represent you and help you navigate self-directed support.
What will I be asked to do?
As part of the study, semi-structured interviews will be conducted. These will last between 30 minutes to 1 hour. You will be asked a number of questions about your personal experiences at your support organisation and about times where you have received support from another service user and impact that it has on your life. The interview will be recorded on an audio recorder and your name will changed in the write up of the report.
How do I take part?
This study is completely voluntary; you do not need to take part if you don’t want to. However, if you are interested in taking part or if you have any questions about the study or you need specific arrangements to take part, please contact April O’Neill at 07711039459 or firstname.lastname@example.org. Travel expenses can be paid or someone can come out to visit you.